The Struggle Is Real

Sometimes I wonder how I am going to do this road trip. Days like today are especially trying…

Having MS (Multiple Sclerosis) is limiting, to say the least; often debilitating. I have had a bad day with my MS… coupled with the worry I am trying to suppress about my friends and family in Texas (Houston and Beaumont areas), it has been a depressing day.

Le sigh…

However, I will not get down and depressed! I will not give up! I will not back away! Depression be damned! Defeat be damned! I am a VICTOR and I persevere no matter what the challenge may be!

There – I re-centered myself… Let’s move on, shall we?

I want to talk about the real issues I may or may not face on the road as a person with a “disability”. I don’t consider myself disabled by a long shot, but sometimes I must admit, even to myself, that I have my limitations.

  1. Long hours
  2. Fatigue
  3. Pain

The long hours could be spent in a car driving, though I’ve mapped out most of our trip and considered this when planning stops. Most days we won’t be in the car over 5 hours, which I can easily tolerate. However, there might be days when the weather is bad and we don’t get to get out of the car as often as we like. These are the days I’m concerned about.

Does anyone have any suggestions that may help me where this is concerned?

Fatigue is a daily struggle for me. I often have insomnia, which means I spend a lot of my daylight hours being tired. Even though I often take naps, I can’t seem to get enough rest.

I’m thinking that stress reduction might be a key. Once we are on the road, I believe my stress level will decrease exponentially, so I’m hoping the fatigue will ease.

Do any of you wonderful people (especially those with Chronic Fatigue issues) have any advice for me on the fatigue subject?

I don’t remember the last time I was 100% pain-free. I think it’s been decades. I stopped taking prescription pain pills when my medication got really screwed up last year, and I began using herbal remedies exclusively. I must say, I love it so much more than using prescription pain medication!!! For one thing, I can control the dosage much easier. Another thing, I don’t have the medication hangover and side effects that were maddening and difficult to deal with when I was on the prescriptions. However, there are some days when I won’t want to use the herbs too much (driving days), and there are other days when the pain is so intense, nothing (not even the prescriptions) works.

Does anyone who suffers from chronic pain have any ideas?

The struggle really is real for those of us who battle chronic illnesses but with support, love, freedom from stress, and perseverance, we can overcome anything!

Thank you all for tuning in and thanks in advance for any suggestions you can offer!

Big Love,

Lainie

 

2 thoughts on “The Struggle Is Real

  1. 1) I’d suggest a “rainy day box” which can be an actual box or a metaphorical box where you put projects, games, and other diversions to keep you occupied on days when you’re stuck in the car for longer stretches. Maybe something artistic and calming like needlepoint or knitting or maybe just a list of songs you work on when you’re stuck inside and would rather be anywhere else in the world. Maybe an island you can write about and think about being in total peace.

    2) I’d also recommend looking into ways to trick out your interior to make it as comfortable as possible. I think long-haul truckers have some special seat cushions but they might also have advice on how to maximize comfort when you’re on the road for extended periods.

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